Turner Syndrome Colorado's mission is to connect individuals and families in the Turner syndrome community and create and support local resources, including a Turner syndrome clinic program.

Our History

In 2010, a few families gathered at a park to meet and share our stories about living with Turner syndrome.  At this meeting, there was an adult woman who was in her 40’s who had never met another person with TS in her entire lifetime.  There were also families with young daughters meeting for the very first time.   It is because of the value of these connections, that the local family group was started. In the late 1990’s and early 2000’s there was an active Support Group Chapter in Colorado.  However, when the families leading the group were no longer able to do so, the group ceased to exist – until the picnic in the park in 2010.   Originally founded as a Support Group—and later as a Chapter--under the Turner Syndrome Society of the United States (TSSUS), Turner Syndrome Colorado became an independent nonprofit organization in 2016.  The Colorado community has shown incredible vision and support in building resources in Colorado with its support of  the eXtraordinarY Kids Turner Syndrome Clinic.  By becoming an independent organization, Turner Syndrome Colorado preserves the ability to continue to build programs and resources that will impact local families.